ASCP Proudly Supports Comprehensive Care for Individuals with Sickle Cell Disease

ASCP, along with more than 90 other like-minded organizations, recently expressed support for the Sickle Cell Disease Comprehensive Care Act (SCDCCA). This bipartisan legislation aims to ensure that individuals with sickle cell disease (SCD) have better access to coordinated, high-quality outpatient care—including all recommended clinical, mental health, ancillary, and support services—by allowing states to establish Medicaid Health Home programs with SCD as the single qualifying condition for eligibility.

A revised version of the SCDCCA was introduced in the House of Representatives by Congressmen Michael Burgess (R-TX) and Danny Davis (D-IL) in late February. Similar legislation was introduced in the Senate by Senators Cory Booker (D-NJ) and Tim Scott (R-SC) in late September. In addition, the Congressional Budget Office recently scored the legislation as saving $4 million in the 10-year budget window—a significant milestone for the legislation.

The Sickle Cell Disease (SCD) Coalition has worked closely with the bill sponsors to support the inclusion of the legislation in an end-of-year package. As part of this advocacy, ASCP and other members of the SCD Coalition wrote the Senate Finance Committee and the House Energy and Commerce Committee urging these committees to include the bill in an end-of-year package. ASCP will continue to support the Sickle Cell Disease Coalition and advocate for the highest quality of care for individuals with SCD.

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